Partners

SPAIN

HSJD/FSJD-CERCA will be responsible for the overall coordination, administration and organisation of the project.

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FINLAND

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ROMANIA

Artemis leads the development of the Patients’ Journey Platform.

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SPAIN

Polibienestar leads the WP5 PALLIAKID Intervention Randomized Controlled Trial (RCT).

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SPAIN

Kveloce’s role includes the definition of policy recommendations, standards for evidence based communication trainings for caregivers and work on the exploitation of results and innovative business models.

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NETHERLANDS

The Erasmus MC leads the Work Package on Evaluation, which covers the formative and summative evaluation of the implementation and effects of the PALLIAKID intervention.

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DENMARK

Mary Elizabeth´s Hospital is participating as a clinical site and will be involved in two clinical trials and in the development of the PALLIAKID tools.

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LATVIA

BKUS is involved as a clinical partner.

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FINLAND

The New Children´s Hospital is participating in the Project as a clinical site. 

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SPAIN

Both IDIAP and ICS will be involved in almost every work packages of the project, providing their expertise in research and delivery of palliative care at the primary health care level.

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SPAIN

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ITALY

Meyer Children’s University Hospital participates in the PALLIAKID Project as a Clinical site.

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UNITED KINGDOM

ICPCN is supporting the project communication and dissemination as well as providing technical input in the different aspects of patient dentification, needs assessment and Advance Care Planning

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TURKEY

SRDC will lead the design, development, deployment, and clinical validation of Early Detection System (EDS), including data integration and the construction of AI models, within WP3.

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ITALY

Chino is dealing in the project with all ethics, privacy, data protection and security, and other compliance related aspects.

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BELGIUM

The EAPC is leading WP7 on Policy recommendations and Knowledge Transfer.

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NETHERLANDS

As developers of the IMPACT tool for Advance Care Planning (ACP) in paediatrics, we are involved in PALLIAKID to adapt the IMPACT tool and train clinicians to use IMPACT in their practice within PALLIAKID.

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ITALY

MCR will support the sites in the start-up phase for preparing the submission package for regulatory and ethics approvals before starting the two clinical studies, the prospective clinical validation trial (WP3) and the randomized clinical trial (WP5).

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Finding solutions together

The proposed solution entails three main results: PALLIAKID Eary Detection System, PALLIAKID intervention (Needs assessment, Advance Care Planning and Patient Journey digital platform); and PALLIAKID XR-based capacity-building program for professionals. In addition, the project will develop policy recommendations, guidelines and standards for patient-centred communication, together with a scale-up strategy to guarantee the project result’s’ sustainability and impact. In this sense, PALLIAKID aims to reduce taboos and misunderstandings of paediatric palliative care with its activities and the planned Public Engagement Strategy. The project is coordinated by Fundacio Privada Per a la Recerca I la Docencia Sant Joan de Deu, Spain with consortium of 19 project partners from 10 European countries.

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