PALLIAKID is an interdisciplinary project aiming to evaluate the feasibility, effectiveness, and cost-effectiveness of novel interventions for children, adolescents and young people (AYA) with palliative and end-of-life care needs in different healthcare systems across Europe, with a focus on those factors that influences the active patients’ and family caregivers’ engagement.
PALLIAKID responds to several needs or gaps identified by the consortium clinical partners, grouped into three cornerstones of paediatric palliative care:
Early identification of children and AYAs with palliative and end-of-life care needs
Comprehensive assessment of children and their family caregivers' needs
A comprehensive, personalised, interdisciplinary care plan including Advance Care Planning.
The proposed solution entails three main results: PALLIAKID Eary Detection System, PALLIAKID intervention (Needs assessment, Advance Care Planning and Patient Journey digital platform); and PALLIAKID XR-based capacity-building program for professionals.
In addition, the project will develop policy recommendations, guidelines and standards for patient-centred communication, together with a scale-up strategy to guarantee the project result’s’ sustainability and impact. In this sense, PALLIAKID aims to reduce taboos and misunderstandings of paediatric palliative care with its activities and the planned Public Engagement Strategy.
The project is coordinated by Fundacio Privada Per a la Recerca I la Docencia Sant Joan de Deu, Spain with consortium of 19 organisations from 10 European countries.
Funded by the European Union (grant no. 101137169) and supported by Innovate UK. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.
This Website is managed by EAPC| Copyright © 2024 PalliaKid
This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.
Strictly Necessary Cookie should be enabled at all times so that we can save your preferences for cookie settings.
If you disable this cookie, we will not be able to save your preferences. This means that every time you visit this website you will need to enable or disable cookies again.