Hospital Sant Joan de Déu (HSJD)

Hospital Sant Joan de Déu (HSJD) belongs to the Hospitaller Order of St. John of God. It is a private non-profit institution, with a vocation for public service since its creation in 1867. It has been dedicated to the comprehensive care of women, children and adolescents, and has become one of the most important specialised paediatric hospitals in Europe.

The Palliative Care and Complex Chronic Patient Unit funded in 1991 (the first one established in Spain) offers care to children and young people with complex illness and emotional support to their family caregivers based on the multidisciplinary work of HSJD professionals.

Fundació Sant Joan de Déu (FSJD-CERCA) is a private non-profit research organization founded in 2002. Its mission is to contribute to the improvement of the health and wellbeing of people by fostering, supporting and managing the research and innovation activities of HSJD) and other linked organisations. Through FSJD-CERCA, HSJD conducts research to find new and better treatments for paediatric diseases.

The role

HSJD/FSJD-CERCA will be responsible for the overall coordination, administration and organisation of the project, guaranteeing that tasks, resources and budget are managed adequately to achieve the project objectives. HSJD/FSJD-CERCA will also participate in different tasks in all WPs, including: – development of the Early Detection System (EDS) and its clinical validation; – co-creation process for development of PALLIAKID Needs Assessment and Advanced Care Planning (ACP) tools and digital platform; – design of the protocol, patient recruitment and implementation of the Randomized Controlled Trial (RCT) study; – support in policy recommendations, communication and dissemination; – support in Data and Ethics management.

Sergi Navarro, MD

coordinator, paediatrician

Silvia Ricart, PHD

co-coordinator, paediatrician

Rita Malpique, PHD

Scientific manager

Elizabeth García, PHD

project manager

Maria Queralt Soler, MD

paediatrician

Maria Rimblas, MD

paediatrician

Carlos Ruiz, MD

paediatrician

Soraya Hernández

Clinical Social Worker

Daniel Toro-Pérez, Phd

psychologist

Emília Comas

psychologist

Lucía Peñarrubia

Nurse

Veronica Gimeno

Nurse

Alba Giró

data project manager

Marta Fortuny

communication and outreach manager

Begonya Nafria

Patient Engagement

Victor Rollo

Patient Engagement

Joana Claverol

Clinical Trial Unit

Montserrat Solá

Clinical Trial Unit

Hernán Elias Lew

Digital Strategy and Data Team

Siscu Torrents

Information Systems Team

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