On January 30th and February 1st, the INSPIRE consortium gathered together in the Cicely Saunders Institute, King’s College London. Following our successful meeting in Lyon last year, this was the second consortium meeting to take place since the project officially kicked off.
During the meeting, we heard from partner representatives on (i) engaging public and patients as key project stakeholders, (ii) updates from WP1 on health service comparative analysis, and (iii) progress on the development of the INSPIRE intervention manual. Among other core topics relating to INSPIRE, the consortium discussed the INSPIRE trial protocol, which will be finalised in early March 2023. This document sets out the structure of the INSPIRE intervention, as well as detailing how we intend to evaluate matters of equity, access and inclusivity, data management, safety, and quality assurance. We are excited to be finishing this initial step of project management and progressing to implementing the INSPIRE intervention shortly!
As well as all things INSPIRE, we were delighted to be joined by our colleagues from the PREFERABLE trial. PREFERABLE is a fellow EU-funded project – Project on Exercise for Fatigue Eradication in Advanced Breast Cancer to Improve Quality of Life’. Professor Anne May (UMC Utrecht), Dr. Martijn Stuiver (Netherlands Cancer Institute- AVL), and Dr. Anouk Hiensch each presented preliminary findings from the PREFERABLE project concerning the experiences of running the initial RCT, the perspectives of patients engaging in the trial, and a brief look at health system preparedness to implement a similar intervention. We look forward to hearing more from the trial and to future INSPIRE- PREFERABLE collaborations.
Hosted by: King’s College London
Attended by delegates from: Hospices Civils de Lyon, European Association for Palliative Care, Fondazione IRCCS Istituto Nazionale dei Tumori, Azienda Unita Sanitaría Locale di Reggio Emilia, Fonden for Almen Praksis, Universitet i Bergen, European Cancer Patient Coalition, University of Edinburgh.