Welcome – please can you tell us a bit about yourself?
I’m Sergi Navarro and I’m a paediatrician and the head of the Children’s Palliative Care (CPC) and Complex Care Team at the Hospital Sant Joan De Déu in Barcelona and Director of the Casia Sofia Centre. I’m also the president of the Spanish Paediatric Palliative Care Association. Here in Barcelona we have a team of more than thirty CPC professionals and part of what we are trying to do is challenging people’s ‘old fashioned’ concepts that palliative care for children is just about end of life care. It’s much more than that. It’s about improving the quality of life for children with many different rare diseases, and this is one of our challenges.
I am also the coordinator and the Principal Investigator of the PALLIAKID project. It’s a real team effort with an exciting expert consortium. When we put the consortium together we included five clinical sites which are part of the European Children’s Hospitals Organisation (ECHO) network. We also included the authors of specific tools such as those for needs assessment and Advance Care Planning and we have the privilege of being associated with two of the most influential organisations in palliative care – the European Association of Palliative Care (EAPC) and the International Children’s Palliative Care Network (ICPCN).
Funded by the European Union (grant no. 101137169) and supported by Innovate UK. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.
This Website is managed by EAPC| Copyright © 2024 PalliaKid
Your expertise can make a difference in paediatric palliative care!
Participate in the #PALLIAKID survey and share your insights to improve the well-being of children with life-limiting illnesses across Europe.
20 minutes is all it takes.
