Project Results

Results

DIAdIC protocol paper

The document title “Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial” describes the DIAdIC study which evaluates the effectiveness of two psychosocial and educational interventions aimed at improving patient-family caregiver dyads.

Worldwide, millions of people with advanced cancer and their family caregivers are experiencing physical and psychological distress. Psychosocial support and education can reduce distress and prevent avoidable healthcare resource use. To date, we lack knowledge from large-scale studies on which interventions generate positive outcomes for people with cancer and their informal caregivers’ quality of life.

You can read it here: Matthys, O., De Vleminck, A., Dierickx, S., Deliens, L., Van Goethem, V., Lapeire, L., Groenvold, M., Lund, L., Arnfeldt, C.M., Sengeloev, L. and Pappot, H., et al. 2021. Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial. BMC palliative care, 20, pp.1-18.

Further study publications

Matthys, O., Dierickx, S., Deliens, L., Lapeire, L., Hudson, P., Van Audenhove, C., De Vleminck, A. and Cohen, J., 2022. How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers. Palliative Medicine, 36(3), pp.529-539. (sagepub.com)

van der Wel, M., van der Smissen, D., Dierickx, S., Cohen, J., Hudson, P., De Vleminck, A., Tutt, L., Scott, D., Di Leo, S., Arnfeldt, C.M. and Jordan, C., 2022. Systematic translation and adaptation of the FOCUS program, a USA-based supportive intervention for persons with cancer and their family caregivers, for use in six European countries. Supportive Care in Cancer, 30(12), pp.9763-9770. PubMed (nih.gov)

Van Goethem, V., Dierickx, S., Matthys, O., Northouse, L., Lund, L., Jordan, C., Turola, E., van der Wel, M., Scott, D., Harding, R. and Deliens, L., 2023. A self-management psychoeducational eHealth program to support and empower people with advanced cancer and their family caregivers: Development using the scrum methodology. Internet Interventions, 33, p.100659. ScienceDirect

Matthys, O., Dierickx, S., Van Goethem, V., Deliens, L., Lapeire, L., De Pauw, A., Hudson, P., Vulsteke, C., Geboes, K., De Waele, S. and Spoormans, I., 2024. Sexual satisfaction and its predictors in patients with advanced cancer and their family caregivers in six European countries: Baseline data from the DIAdIC study. Psycho‐Oncology, 33(6), p.e6347.- Wiley Online Library